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Our Vision

We envision a world where every person affected by X-linked neurodevelopmental disorders has access to effective care, therapies, and support. By connecting research, clinical care, and patient advocacy, we accelerate discoveries, drive innovation, and empower families and communities to thrive.

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What We Do

We lead the way in X-linked neurodevelopmental research through strategic initiatives focused on scientific breakthroughs and community support.

Research Collaboration

Bringing together scientists and institutions to share data, ideas, and resources that accelerate discovery.

Education & Training

Offering webinars, workshops, and materials to advance understanding among clinicians, researchers, and families.

Multistakeholder Collaboration

Connecting researchers, clinicians, advocates, and industry to advance research and care.

Grant Opportunities

Align research priorities and collaborate on grant opportunities.

Our Members

Our members include leading academic researchers, clinicians, patient advocacy groups, biotech and pharmaceutical partners, and families dedicated to improving outcomes for those with X-linked neurodevelopmental disorders.

Help guide our mission.

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Our Founder

Jin Lee, Ph.D

Dr. Jin Lee is a founding board member of CURENDD, an international nonprofit advancing research, education, and collaboration for X-linked neurodevelopmental disorders. She has held leadership roles across biopharma and healthcare innovation and serves on multiple startup and nonprofit boards. Dr. Lee earned her Ph.D. in Experimental Psychology from the University of Oxford and her B.A. from the University of Pennsylvania.

Medical Advisory Board

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Wendy Chung, MD, PhD

Chief of Pediatrics

Boston Children's Hostpital

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Elizabeth Berry-Kravis, MD, PhD

Pediatric Neurologist

Rush Medical Group

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Olivia Kim-McManus, M.D.

Head of Clinical Research

Johns Hopkins University

Expert Insights

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Get Involved

Whether you’re a researcher, clinician, family member, or industry professional, there’s a place for you in CURENDD.

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