About Us
Our Vision
We envision a world where every person affected by X-linked neurodevelopmental disorders has access to effective care, therapies, and support. By connecting research, clinical care, and patient advocacy, we accelerate discoveries, drive innovation, and empower families and communities to thrive.
What We Do
Research Collaboration
Bringing together scientists and institutions to share data, ideas, and resources that accelerate discovery.
Multistakeholder Collaboration
Connecting researchers, clinicians, advocates, and industry to advance research and care.
Education & Training
Offering webinars, workshops, and materials to advance understanding among clinicians, researchers, and families.
Grant Opportunities
Supporting collaborative projects through consortium-wide funding initiatives.
Our Members
Our members include leading academic researchers, clinicians, patient advocacy groups, biotech and pharmaceutical partners, and families dedicated to improving outcomes for those with X-linked neurodevelopmental disorders.
Scientific Advisory Board
Medical Advisory Board
Expert Insights