Join Our Mission
Help us accelerate the path to a cure for Neurodevelopment Disorders (NDDs)
Volunteer Positions
We are always looking for passionate individuals to support our events and initiatives. Whether you have administrative skills, event planning experience, or simply a desire to help, there is a place for you at Cure NDD.
Volunteer roles are flexible and can be tailored to your skills and schedule. Common ways to help include:
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Research and grant support
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Event planning and logistics
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Outreach to families and partners
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Social media and communications
Join Our Board
About
Cure NDD is a 501(c)(3) nonprofit dedicated to accelerating research and finding cures for neurodevelopmental disorders. The Consortium for Understanding, Research, and Education in X-linked Neurodevelopmental Disorders (Cure-NDD) unites researchers, clinicians, patient advocates, and families worldwide to accelerate scientific discovery, share knowledge, and advance innovative therapies.
The Role
This remote volunteer leadership role works closely with the Founder/CEO to guide the Executive Board and advance CureNDD’s strategic plan and mission. We are seeking dedicated, high-impact leaders to provide strategic oversight, govern our mission-critical initiatives, and ensure long-term sustainability.
Key Responsibilities
Fundraising & Development
Support nonprofit fundraising, development, or philanthropic strategy, including direct involvement with major gift campaigns, grant writing, etc.
Strategic Oversight
Collaborate with the Founder/CEO to review program progress and approve annual budgets.
Advocacy
Act as an ambassador for CureNDD.org within the scientific and donor communities.
Ideal Candidate Profile
Educational Background
A clinical or research doctorate (e.g., MD, DNP, PharmD, PhD, EdD, DrPH) is strongly encouraged to apply. Exceptional candidates with a master’s degree and relevant experience will be considered.
Professional Expertise
Meaningful experience in nonprofit fundraising, development, or philanthropic strategy, including direct involvement with major gift campaigns, capital campaigns, grant writing, or planned giving.
Scientific & Clinical Expertise
Experience in rare disease research, specifically within laboratory or clinical environments.
Specialized Skills & Lived Experience
Licensed attorneys or accountants are encouraged to apply. We also value a personal connection to neurodevelopmental disorders and a passion for medical research.
Commitment & Expectations
Term: This is a 2-year term commitment.
Time Commitment: Approximately 2–4 hours per month. This includes preparing for and attending four (4) board meetings per year, committee service, and occasional outreach activities.
Compensation: This is a volunteer position; there is no financial salary.
Travel: While remote, CureNDD.org will reimburse all pre-approved, reasonable travel expenses for any in-person meetings or site visits.