Projects
Cure NDD drives innovation and collaboration to advance understanding, treatment, and care for children with X-linked neurodevelopmental disorders. Through research, collaboration, and innovation, Cure NDD works to improve diagnosis, treatment, and care for children with X-linked neurodevelopmental disorders.
LEAD Project
(Leveraging Early Genomics for Assessment of Developmental Delay)
Improving access to genetic testing
Why Aren’t More Children Receiving genetic testing?
Help Us Find the Answer.
Cure NDD is launching a national 3-month pilot study with Biologic Pharma Solutions across pediatric care settings to identify the real-world barriers to prescribing genetic testing for children with suspected neurodevelopmental disorders.
By partnering with pediatric care sites across the U.S., we aim to:
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Identify clinical, workflow, and insurance barriers
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Increase appropriate genetic testing prescriptions
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Generate national data to improve access to genomic diagnosis
