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Projects
Cure NDD drives innovation and collaboration to advance understanding, treatment, and care for children with X-linked neurodevelopmental disorders. Through research, collaboration, and innovation, Cure NDD works to improve diagnosis, treatment, and care for children with X-linked neurodevelopmental disorders.
LEAD Project
Leveraging
Early Genomics for
Assessment of
Developmental Delay
Why Aren’t More Children Receiving genetic testing?
Help Us Find the Answer.
Cure NDD is launching a national 3-month pilot study with Biologic Pharma Solutions across pediatric care settings to identify the real-world barriers to prescribing genetic testing for children with suspected neurodevelopmental disorders.
By partnering with pediatric care sites across the U.S., we aim to:
- Identify clinical, workflow, and insurance barriers
- Increase appropriate genetic testing prescriptions
- Generate national data to improve access to genomic diagnosis
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