[Webinar] Dr.Kim on Understanding ASOS & Informed Consent
Tue, Jun 30
|Zoom
Join DEEP and KCNT1 for a webinar featuring Dr. Olivia Kim-McManus, a member of Cure NDD's Clinical Advisory Board, as she discusses antisense oligonucleotide (ASO) therapies, emerging treatment approaches, and key considerations for informed decision-making in rare disease care.
![[Webinar] Dr.Kim on Understanding ASOS & Informed Consent](https://static.wixstatic.com/media/5bd348_9f7ededba9ed42e9b4298e41178c8bc3~mv2.png/v1/fill/w_418,h_550,al_c,q_85,enc_auto/5bd348_9f7ededba9ed42e9b4298e41178c8bc3~mv2.png)
Time & Location
Jun 30, 2026, 1:30 PM – 2:30 PM PDT
Zoom
About the event
Join DEEP and KCNT1 for an educational webinar exploring the fundamentals of antisense oligonucleotide (ASO) therapies and the critical role of informed consent in rare disease care.
This session will feature Dr. Olivia Kim-McManus, a member of Cure NDD's Clinical Advisory Board, who will provide an overview of ASO therapies, their potential applications, and important considerations for families navigating emerging treatment options. Dr. Kim-McManus is a pediatric neurologist and epileptologist at Rady Children's Hospital-San Diego and a leader in the development of precision therapies for rare genetic neurological disorders.
The webinar will also include perspectives from caregivers with firsthand experience navigating ASO-related decisions, offering valuable insights into the challenges, questions, and considerations families encounter when evaluating experimental and individualized therapies.
Whether you are a caregiver, clinician, researcher, or advocate, this discussion will provide practical information to help navigate the evolving landscape of rare disease therapeutics and informed decision-making.