About
Cure NDD is a 501(c)(3) nonprofit dedicated to accelerating research and finding cures for neurodevelopmental disorders. The Consortium for Understanding, Research, and Education in X-linked Neurodevelopmental Disorders (Cure-NDD) unites researchers, clinicians, patient advocates, and families worldwide to accelerate scientific discovery, share knowledge, and advance innovative therapies.
The Role This remote volunteer leadership role works closely with the Founder/CEO to guide the Executive Board and advance CureNDD’s strategic plan and mission. We are seeking dedicated, high-impact leaders to provide strategic oversight, govern our mission-critical initiatives, and ensure long-term sustainability.
Key Responsibilities
Fundraising & Developmen
Support nonprofit fundraising, development, or philanthropic strategy, including direct involvement with major gift campaigns, grant writing, etc.
Strategic Oversight
Collaborate with the Founder/CEO to review program progress and approve annual budgets.
Advocacy
Act as an ambassador for CureNDD.org within the scientific and donor communities.
Ideal Candidate Profile
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Educational Background:
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A clinical or research doctorate (e.g., MD, DNP, PharmD, PhD, EdD, DrPH) is strongly encouraged to apply. Exceptional candidates with a master’s degree and relevant experience will be considered.
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Professional Expertise:
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Meaningful experience in nonprofit fundraising, development, or philanthropic strategy, including direct involvement with major gift campaigns, capital campaigns, grant writing, or planned giving.
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Scientific & Clinical Expertise:
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Experience in rare disease research, specifically within laboratory or clinical environments.
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Specialized Skills:
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Licensed attorneys or accountants are highly encouraged to apply to assist with governance and fiscal oversight.
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Lived Experience:
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A personal connection to a child with a neurodevelopment disorder and a passion for medical research.
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Commitment & Expectations
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Term:
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This is a 2-year term commitment.
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Time Commitment:
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Approximately 2–4 hours per month. This includes preparing for and attending four (4) board meetings per year, committee service, and occasional outreach activities.
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Compensation:
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This is a volunteer position; there is no financial salary.
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Travel:
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While remote, CureNDD.org will reimburse all pre-approved, reasonable travel expenses for any in-person meetings or site visits.
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